Here we go again…
Tribe members that have been with us for several years now may recall that, in February of 2022, Scarlett contracted bacterial meningitis from an infusion, in which she was in the hospital for nine days. You see, Scarlett gets infusions of Brineura at Boston Children’s Hospital (BCH) every other week, in an all-day-long process in…
The 2023 BDSRA Annual Conference
This month was the 2023 BDSRA Annual Family Conference, in the great state of Texas. Specifically, it was in Denton, TX — which is actually about 45 minutes from where we lived in Grapevine prior to moving to MA after Scarlett’s diagnosis. Since Scarlett isn’t great on flights, and Cody has never even been on…
WBZ News Appearance!
It has been a minute since I’ve last written. Honestly, I’ve written SO MANY blogs in my head, and just haven’t gotten them down on paper (so to speak). There have been things that I’ve wanted to share with everyone, but honestly, sometimes it takes so much mental energy to relive something, that I end…
Subscribe for updates!
You can follow older updates about Scarlett’s fight at the links below:
